step aside pc i am the master of this thread
Been there, done that a few times now with different things - most recently the exact situation in the title, right down to being told that I was probably not gonna survive very long. So it's interesting now, thinking back, and seeing how my perspective on this whole thing has changed and also interesting reading the thoughts of some people here.
Being diagnosed with such a thing was definitely a wake-up call of sorts. Not exactly "RIGHT TIME TO DO SOMETHING WITH MY LIFE AND GO TRAVELLING AND MEDITATE ON A MOUNTAIN AND COOK METH AND" because in the state that being told you're probably going to die leaves you in, you're not really thinking about any of those things; nor do you honestly have the drive (and likely, the physical capacity) to do them. It's more a wake-up call in a "oh, damn. this is like, a thing that is happening." way; a sort of realisation that, just like all those people you see statistics about on TV and read about in the news, at some point you are going to die. Maybe or maybe not now, but definitely at some stage; it shatters that sort of false sense of security, the idea that "it's alright, it's not gonna happen" that you go around with every day - you realise that you used to think you were invincible, but you were just as vulnerable as everyone else the whole time.
In turn with that rather... morbid thought does eventually come the whole "right, I'm gonna do something now" moment. For most people anyway. But there also comes with that another horrible, nagging thought at the back of your mind - that this moment came too late. You wish more than anything that you'd realised earlier, when you were in a much more practical state to actually do stuff, that life's a finite thing and that you really do need to make the most of it.
It's the latter of the above that makes me read this thread and almost be humoured by the responses, since I used to think exactly like all you guys. "Damn, if I was diagnosed with something that I was told was probably gonna kill me, I'd get living life to the full straight away!!!!". But now I realise what... honestly, little sense that makes. I now sit here reading that and want to smack my head on a table because why for the love of god did i wait until i was at my worst to start living like i was at my best. It's entirely illogical to wait until you know that your time is limited, and until you're in a situation which limits what you're able to do, to start spending your time how you want to. So I'd really invite anyone here who said something similar to the above to scratch that thought entirely and start doing it right now. The blunt truth is that you are not invincible, you are not always going to be as able as you are right now, and one day it's entirely possible that you will be in the OP's situation and you'll think back to when you said "If I was diagnosed with [whatever] my perspective on life would change and I'd start re-thinking what was important and I'd live life how I want to and I'd fill out my bucket list and etc" and realise that you didn't need to wait to do all that.
I'm lucky in that I'm (for the most part) better now and I did manage to come out on the better side of what we thought was gonna pretty much do me in. I'm lucky that I've now got the opportunity to use the things I came to terms with during that time for the better for the rest of my life. And you guys are all lucky that you're already in a position to do so. But please for the love of god do not take your current position for granted. Do not wait until you're in the worst position to start being at your best. Do it now.
...or alternatively you could just go cry forever like some people itt because it's easier or something idk lol